BPAN Warriors

Non-Profit (budget less than $99,999)
 
Chisholm, Sarah - Executive Director  
BPAN Warriors 
350 NE 28th Rd 
Boca Raton, FL  33431
p. work 561-706-0310  
c. cell  
f. fax 561-338-3893 
Keywords: Rare Disease, Autism, Neurodegenerative, Parkinsons, Alzheimers, Dystonia, Global Delays, Bruxism, Genetic Mutation, WDR45, BPAN, Epilepsy, Infantile Spasms, Regression, Dementia, Dystonia, Patient Advocacy, WES
Description: "To actively support, facilitate and expedite therapeutic initiatives and scientific research that will enhance the quality of life for individuals living with BPAN by mobilizing and empowering BPAN Warrior families worldwide, through access to community resources, information and most importantly, CONNECTION to our BPAN Warrior Tribe."

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